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Links

 

http://www.soft.org.uk/   SOFT are a support organisation for trisomy 18 and trisomy 13, they are UK based but also have one in the US

 

http://www.trisomy18.org/site/PageServer?pagename=whatisT18_whatis    This is worldwide and is the main support and reasearch for trisomy 18

 

http://www.arc-uk.org/   ARC is the only national charity which provides non-directive support and information to expectant and bereaved parents throughout and after the antenatal screening and testing process

 

http://www.uk-sands.org/   SANDS UK are a support organisation for anyone who has lost a baby at any stage, from miscarriage to stillbirth or in the neonatal period

 

http://www.tcf.org.uk/    

 

http://www.trisomy18-13supportuk.com/      Trisomy18-13 support is there to  help those dealing with these complex conditions to lead a 'life more ordinary'. We are parent driven and support families:caring for a baby or child with trisomy 18 or trisomy 13, sometimes known as Edwards' syndrome or Patau's syndromethose caring for a baby or child with a related disorder such as mosaicismfamilies who have suffered a loss from one of these syndromes.

 

http://www.macysmemory.co.uk/  Macy's memory is there to Support Families of terminally ill children with genetic or chromosome abnormalities within a 200 mile radius of northamptonshire

 

http://www.emilysstar.co.uk/

 

http://www.childrenarebutterflies.org.uk/    A Northampton charity providing support and assistance to bereaved families who have lost a child of any age

 

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